I am so blessed to call this amazing young lady my daughter. Her light is enormous and I am so proud of her for sharing it!
My
name is Reegan Gleave and i was born with Amniotic Band Syndrome.
Amniotic Band Syndrome (ABS) is a congenital birth defect caused by the
partial rupture of the amniotic sack. Fibrous bands float around in the
amniotic fluid. These sticky bands can get wrapped around and trap
limbs, cut off blood supply causing dead limbs, or a complete "natural"
amputation. ABS is often difficult to detect before birth because the
individual strands are small and hard to see in an ultrasound. I had my
first surgery when i was 5 days old and had many through the years of my
childhood.
As a parent of a child with ABS my parents felt many different emotions. At first shock because they had not seen any deformities besides my club foot in any ultrasounds. My mom felt so much guilt because she thought that she had somehow caused this. Sadness as they thought about all of the things that i wouldn't be able to do..none of which happened. They were so grateful because it didn't take my arms, legs, face, or my life...many don't survive pregnancy because the sack breaks. A lot of stress and worry during surgeries, but again grateful because I had the most amazing care. They also felt very prideful through the years because of how i have handled my disABILITY and how i taught my family and friends to be strong and brave.
Growing up i had no idea i was different. I had the most amazing parents and family who loved me so much and never ever treated me different. The day i went to my first day of head start i knew immediately that i was not like the rest of the students. I had difficulties writing and using my scissors. My teacher kept trying to make me write right handed and i remember being so frustrated because i am left handed. I always felt i was at the bottom of the class, and i had one major bully who would tease me until i cried. I told my aunt about the bully and she told me to go to school the next day and tell him that if he didn't stop my aunt was going to come to school and pull his underwear over his head. I said exactly that and he never again bullied me. One night i was sitting in my bed and i remember wondering when exactly i became weird or different, i didn't want to be seen that way. I had a stuffed dog that my uncle gave me and i would sit and talk to it like it was real. That night i told it that I am not stupid! I decided i wanted people to see the things that i could do instead of what i had a hard time doing.
In preschool i was the first person in my class to tie my own shoes, which is the first story my grandpa tells everyone about me. The students had gotten used to me and were really accepting me for the most part, surprisingly more than some adults. In second grade my family moved away, i had to go to a new school, try to make new friends, and answer new questions. I was so worried and so scared for my first day of school. My mom knew how terrified i was and I think secretly she was a little scared herself. So she came to school with me, walked me to my class, and asked my teacher if she could sit down and talk to the students for a moment. She explained what had happened to me and that i am just like everyone else. After she left my classmates completely accepted me and it was no big deal. I will forever be grateful for my moms courage to stand up for me. She set the example that i needed to always stand up for myself and not hide who i am.
Through the years of elementary school life was pretty easy i had an occasional bully but i got really good at shutting them down and walking away. Then came middle school and my peers became brutal. The kids would often make fun of me and call me "joystick" because they said my fingers looked like game controllers. That really hurt, I started feeling ugly, stupid, and handicapped. I felt like an exhibit in the zoo, People just stared at me like i was some kind of species that they had never heard of. I started fighting and eventually just ate lunch with the assisted principle.
My parents got divorced in the middle of my seventh grade year. We moved again. At my new school i tried really hard to blend in and just stick with myself so nobody would notice my hands. This period in my life was awful i was so down on myself constantly, but then a girl in school invited me to sit next to her in art class. She became my very best friend in the whole world, Jayden invited me to go to church with her, where her dad was the pastor, I started going often and I had never felt so accepted. Jayden literally saved my life.
Living with ABS has had its challenges and I've worried about so many things like, if a boy would notice my hands on a date, or I'd never be able to get my nails done, I wondered if I'd ever get married, and now i worry that my future children will be teased because of my differences.
I used to walk around with my hands in a fist and you would never see me in any kind of open toe shoes. At times i held myself back socially because i didn't think i was good enough. I started partying just to fit in with some kind of crowd. I finally began to really get it through my head that i was than that. I am worth so much more than partying and being down on myself. I began to pick up my pieces and put them back together. I learned that having a good sense of humor was the best way for me to cope with my hands and feet. I love to make up stories when people ask me what happened, my favorite is " I got bit by a shark." Thankfully i was born with a spit fire attitude and if you don't like me its your loss, if you tell me i can't do something i'll do it twice.
My name is Reegan Gleave and I am a survivor. After twenty years i finally love who I am. I am so thankful for all of my trials because each one has taught me something incredible. I've learned bullies are just sad and little on the inside and are scared of the light that I bring to this world. I've learned compassion, true friendship, love, and determination. I learned not to be a victim but to use my trials to make me stronger so that i can help bring hope and inspiration to peoples lives.
Living with ABS has been the biggest blessing I could have ever asked for, it has brought some amazing and loving people into my life. Especially my wonderful husband. It takes a very special man to be able to look past my differences and love me for who i really am on the inside and not care what anybody thinks about me. I am forever grateful for the unconditional love and support I get from him every single day. He has made me believe in myself and my beauty. He has given me the courage to show myself to people in a way I would have never done before.
My inspiration for sharing my story is that somewhere there is someone who felt like I did, and needs to know there is always hope and you are never alone.
Always let your light shine bright, God only gives his toughest battles to his strongest warriors.
I LOVE WHO I AM!!!!!
As a parent of a child with ABS my parents felt many different emotions. At first shock because they had not seen any deformities besides my club foot in any ultrasounds. My mom felt so much guilt because she thought that she had somehow caused this. Sadness as they thought about all of the things that i wouldn't be able to do..none of which happened. They were so grateful because it didn't take my arms, legs, face, or my life...many don't survive pregnancy because the sack breaks. A lot of stress and worry during surgeries, but again grateful because I had the most amazing care. They also felt very prideful through the years because of how i have handled my disABILITY and how i taught my family and friends to be strong and brave.
Growing up i had no idea i was different. I had the most amazing parents and family who loved me so much and never ever treated me different. The day i went to my first day of head start i knew immediately that i was not like the rest of the students. I had difficulties writing and using my scissors. My teacher kept trying to make me write right handed and i remember being so frustrated because i am left handed. I always felt i was at the bottom of the class, and i had one major bully who would tease me until i cried. I told my aunt about the bully and she told me to go to school the next day and tell him that if he didn't stop my aunt was going to come to school and pull his underwear over his head. I said exactly that and he never again bullied me. One night i was sitting in my bed and i remember wondering when exactly i became weird or different, i didn't want to be seen that way. I had a stuffed dog that my uncle gave me and i would sit and talk to it like it was real. That night i told it that I am not stupid! I decided i wanted people to see the things that i could do instead of what i had a hard time doing.
In preschool i was the first person in my class to tie my own shoes, which is the first story my grandpa tells everyone about me. The students had gotten used to me and were really accepting me for the most part, surprisingly more than some adults. In second grade my family moved away, i had to go to a new school, try to make new friends, and answer new questions. I was so worried and so scared for my first day of school. My mom knew how terrified i was and I think secretly she was a little scared herself. So she came to school with me, walked me to my class, and asked my teacher if she could sit down and talk to the students for a moment. She explained what had happened to me and that i am just like everyone else. After she left my classmates completely accepted me and it was no big deal. I will forever be grateful for my moms courage to stand up for me. She set the example that i needed to always stand up for myself and not hide who i am.
Through the years of elementary school life was pretty easy i had an occasional bully but i got really good at shutting them down and walking away. Then came middle school and my peers became brutal. The kids would often make fun of me and call me "joystick" because they said my fingers looked like game controllers. That really hurt, I started feeling ugly, stupid, and handicapped. I felt like an exhibit in the zoo, People just stared at me like i was some kind of species that they had never heard of. I started fighting and eventually just ate lunch with the assisted principle.
My parents got divorced in the middle of my seventh grade year. We moved again. At my new school i tried really hard to blend in and just stick with myself so nobody would notice my hands. This period in my life was awful i was so down on myself constantly, but then a girl in school invited me to sit next to her in art class. She became my very best friend in the whole world, Jayden invited me to go to church with her, where her dad was the pastor, I started going often and I had never felt so accepted. Jayden literally saved my life.
Living with ABS has had its challenges and I've worried about so many things like, if a boy would notice my hands on a date, or I'd never be able to get my nails done, I wondered if I'd ever get married, and now i worry that my future children will be teased because of my differences.
I used to walk around with my hands in a fist and you would never see me in any kind of open toe shoes. At times i held myself back socially because i didn't think i was good enough. I started partying just to fit in with some kind of crowd. I finally began to really get it through my head that i was than that. I am worth so much more than partying and being down on myself. I began to pick up my pieces and put them back together. I learned that having a good sense of humor was the best way for me to cope with my hands and feet. I love to make up stories when people ask me what happened, my favorite is " I got bit by a shark." Thankfully i was born with a spit fire attitude and if you don't like me its your loss, if you tell me i can't do something i'll do it twice.
My name is Reegan Gleave and I am a survivor. After twenty years i finally love who I am. I am so thankful for all of my trials because each one has taught me something incredible. I've learned bullies are just sad and little on the inside and are scared of the light that I bring to this world. I've learned compassion, true friendship, love, and determination. I learned not to be a victim but to use my trials to make me stronger so that i can help bring hope and inspiration to peoples lives.
Living with ABS has been the biggest blessing I could have ever asked for, it has brought some amazing and loving people into my life. Especially my wonderful husband. It takes a very special man to be able to look past my differences and love me for who i really am on the inside and not care what anybody thinks about me. I am forever grateful for the unconditional love and support I get from him every single day. He has made me believe in myself and my beauty. He has given me the courage to show myself to people in a way I would have never done before.
My inspiration for sharing my story is that somewhere there is someone who felt like I did, and needs to know there is always hope and you are never alone.
Always let your light shine bright, God only gives his toughest battles to his strongest warriors.
I LOVE WHO I AM!!!!!
